Max had his latest visit with Dr Norman on Friday. I was frustrated and had some questions for her. She seems to be at a loss as to what to do also. We have two options left before she will send us to another specialist. The first is an EMG and the second is a biopsy. With the advice from the doctor we decided to go with the EMG since it may rule out the biopsy all together. Also the biopsy is technically surgery and there are less complications involved with the EMG. Basically Max will have electrodes all over and receive electric shocks to see how everything responds. We have been waiting to do this test because it is painful, but now we are out of options. After these tests we will probably go to Texas to Cook Children's or she said that depending on the test results she may send us to a muscular disease specialist in Dallas. Both are some of the best doctors in our region which means the wait list is 6-9 months out. Keep us in your thoughts as we keep trying to figure out what is going on. However, we did receive some good news too this last week. Max has now been accepted by New Covenant Methodist children's day out program!!! I spoke with the director for a while and she assured me that she thinks that typical and non typical children should be together and be allowed to play and interact together. Jeff and I are really excited for Max to get to be around other kids. I was pretty disappointed when Max didn't get to go to school with his friend Nicholas at St Marks, but now he will get to still be around other kids and just maybe he will pick something up from them.
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