Sunday, August 19, 2012

Is it really just a word?

So, tonight I was having a relaxing evening at home with my family. Max is in bed,and Jeff and I finished watching a movie and decided we would watch a little light TV before bed. The Comedy Central Roast of Roseanne Barr was on, sure lets watch it. Little did I know, because apparently I have been living under a rock about some comments that were made by Wayne Brady. As many of you know I don't share my political views or opinions on social issues here. That just isn't what I want my blog to be about. But I seriously can not understand why it is for some reason acceptable to make jokes about someone's child. And what really ticks me off is that the joke is for some reason okay because he is a comedian and comedy is supposed to be edgy. Some of you may not be aware of the comment made, and for those of you who also live under a rock like myself here it is.During Brady's remarks, he was making fun of fellow roaster Jeff Ross."Now the thing is Jeff," said Brady, "these are all jokes, and I really like you. I really, really like you. But a lot of people hate you, especially Sarah Palin because you remind her of what Trig is going to look like when he’s 40."

What the heck is wrong with this picture? Why is it fine for a grown man to make fun of a defenseless child because of his handicap?  I may not agree with Sarah Palin and her politics or find Wayne Brady funny, but when did it become okay to make fun of a special needs child for a punch line. What the heck happened to trying to teach people tolerance? It is ignorant people like Wayne Brady that would think that attacking someone's defenseless child is fine for a cheap joke. Guess what Wayne Brady, you are the one who chose to be on a show where it is known that people will be making fun of you in the name of comedy. I'm not a sensitive person when it comes to comedy and in fact have been known to tell my fair share of raunchy jokes. But never would I make fun of a child and especially for their handicap. Some of you probably think that I am being sensitive, but the truth is that if I just sit by and allow comments like this to be made why should I expect anyone to see why this is wrong. Several years ago, before Max was born, I nonchalantly used the word "retard" to a parent of a special needs child. Until that point, I was ignorant like so many people. I remember thinking how unacceptable it is to say things like this, and I was embarrassed. I got off the phone and cried and realized how wrong I was and that I had been ignorant. I had no way of knowing his daughter had Downs syndrome, but that was no excuse. I realized all that I could do was apologize and learn from my own stupidity. I don't understand why it is okay to use words like "retard" as a derogatory slam or a punch line in a joke. A blog I follow brings up a valid point, Would you call my child a retard? Would you call someone else a retard in front of him because someone else did something dumb or acted stupid. Max is in special needs class rooms, receives additional therapies and has clear developmental issues. Things that come easy to others he has had to work and fight for. He is the strongest and most kind child I have met. I hear people in the store talking about Max, the points and the people who have had the gall to stare as Max falls down repeatedly. I heard you call him "retarded" and ask you mother "what's wrong with him" as your child points. Don't brush it off. Explain to others that people are different and differences are okay. Shouldn't we all be teaching our children tolerance? That differences should be embraced and not pushed aside. Everyone wants to so freely give their opinions without actually knowing the full truth. My family works hard to help Maxwell learn and grow just like any other. I have big hopes and dreams for my son and I realize that just because doctors say that Max wont ever be able to live on his own or he may never be able to talk to where he is completely understood doesn't mean he cant. It's something for us to strive towards. Maxwell being an active functioning member of society is my ultimate goal. So the next time you decide it's okay to use a child that is different as your punch line in a joke maybe you should think twice about what you are saying.

One of the blogs I follow is written by a mom with a child named Max that has cerebral palsy. She made a short video for the for the ongoing R-word campaign which was created by Special Olympics to help eliminate the use of the word "retard." She made the video to show all the people that don't understand what is so wrong with a word.


Since I started writing this I have seen that Wayne Brady issued an apology. I think it is a good start and I respect the fact that people can admit when they have been wrong. If you are interested here is what Wayne Brady wrote on his Facebook page.

 This letter has taken me a few days to compose because of the conflicting emotions that I've experienced since the day of the Roast and it's subsequent airing. The environment of the Roast is a comedic (hopefully), tasteless (mostly always), affair that encourages everyone to out-filth each other. Not normally what I'm known for, right? But, when I was invited, I jumped at the chance to play outside of my perceived "norm" and have fun. The Jeff joke was written for me and at the end of the day I take full responsibility for saying it. It wasn't meant as a slam to Trig and at the time I didn't see it that way.

I could defend it as a performer, but I would rather apologize from the bottom of my heart as a father. I understand how a parent, who loves their child, who tries to nurture and shield them when they cannot defend themselves, would take offense.. I have many times experienced this feeling. I've had awful things said about my daughter.. Violent and most times racial stabs. Being in the spotlight I have built a thick skin to these sorts of things. My daughter ( who's now old enough to understand ) is another story. That being said I write this letter with sensitivity and a strong stance of responsibility for my actions.

I thank everyone who's expressed their opinion for reminding me that my voice is heard... It's easy to forget sometimes in front of cameras and lights.


To the Palins, please know that no malice or harm was meant. To the other families who were touched negatively, I hope you'll be able to accept this apology as well.


I've always said that people in the public eye should be held responsible for what you say and I'm no hypocrite. Thanks for reading and letting me express my side.


Take care all,

Wayne
 

Thursday, August 16, 2012

Maxwell Oliver

I was thinking the other day that I never really shared Maxwell's birth story. Of course I think only my friends and family read this blog so of course they already know. But someday I might not remember how everything felt or how the room smelled. And for that time I want to be able to read this and live it all over again. I am definitely one of those women that pregnancy doesn't treat well. But Jeff and I had tried to get pregnant for about 2 years and I was so happy to actually be pregnant that I didn't care about the discomfort. I couldn't believe that I was pregnant so I took 4 different tests. I had so many negatives I figured the first test had to be a fluke because the line was so faint.

 I'm one of those people where I don't want to call the doctor over every little thing. And clearly I maybe should have looking back. But there is that whole thing about hind sight being 20/20. I wouldn't trade my experience for anything and I would do it again in a second. With Maxwell's 4th birthday being today I'll tell you about one of the scariest and happiest days of my life.

This is me not long after finding out I was pregnant. I was about 2 months pregnant and not showing yet.

 We found out we were having a little boy at 20 weeks. I was happy no matter what but Jeff was really excited to have a boy. I think he was afraid of everything that came with little girls and he figured he had someone to watch baseball with. We had a name picked for both a boy or girl depending on how the ultrasound went. If Max would have been a girl he would have been named Ellison Jennifer. We had picked several names for a little boy and we constantly went back and forth. My favorite names were Campbell and Hogan, Jeff on the other hand wanted Vladamir, Boris and Rocco. We had even settled on the name Otis Andrew at one point, but everyone hated it so much that we changed it. We figured if he is already getting made fun of in the womb we should probably change it now before it got really nuts.

I didn't realize my pregnancy was coming to an end so quickly. This last picture was taken a few weeks before I delivered and you can see I had already started swelling a lot. My wedding ring didn't fit anymore and I was not feeling well. Who knew your nose could even swell!

I hadn't been feeling well for days. I was so swollen that I could barely walk or do even simply things. It was a Friday morning and my alarm went off. I got in the shower and attempted to shave my legs because I wasn't able to fit in any of my maternity pants so I knew I would have to start wearing dresses. I remember driving to work and clocking in. Being asked how I felt even though I knew I looked like hell. People were worried about me but I told them not to be. I had a doctors appointment that afternoon right after work and I was worried because I was thinking I was going to be put on bed rest by the doctor. I didn't want to spend the next 6 and a half weeks on bed rest so I was dreading the appointment. I sat down to work and started a normal day. A few hours into my shift I started feeling really bad and I kept seeing spots. With my job I had to be able to see the computer so I could keep track of my officers and I knew I needed to step away for a few minutes. I asked a girlfriend to work my channel for a few and tried to relax. Apparently I was looking pretty rough and my co-workers called medical. Even though I was begging them not to send an ambulance I lost the fight. One of my co-workers was also an EMT so he was adamant that I get checked. The EMT's arrived and they started to check my vitals. My blood pressure was so high that they were worried I was close to having a seizure which would have been bad for me and the baby. They wanted to transport me by ambulance but this time I really refused and told them I would drive myself. Everyone came out of the woodwork telling me that they were taking me if I refused to be transported. Surprisingly enough my dad was getting a permit for a new shop building at the building next door. He saw the ambulance in the parking lot and I guess his spidey senses were tingling and he came down to check it out. When he found out it was his little girl he made me get in his truck and head to the hospital. I don't know what I would have done if I didn't finally listen to everyone and go get checked. This story is getting long so I'll spare you the minor points. Needless to say my doctor came by and was surprised to see how swollen I had gotten. I had no clue that your skin could actually split from being so swollen. Have no fear it didn't happen but it was close. Both my parents were with me and Jeff too. They were doing some tests and I just knew they were going to send me home on bed rest. I sent Jeff back to work so he could finish up and come back. The doctor then came in and told me that I had pre-eclampsia and it had gotten so bad that I was going to have to be admitted and deliver in the next 24 hours. They gave me a steroid shot to try and help develop Max's lungs to help him breath at birth. The doctor told me there was a chance that Max would be fine but that I needed to be prepared for any possibility. Apparently Caucasian males tend to have the hardest time in the NICU, the nurse tried to put me at ease telling me it was "wimpy white boy syndrome" she would tell me "to bad you not having an African American girl, they do the best in the NICU." We laughed and I told her I didn't think I would be able to change it now. But my wimpy little white boy is a fighter, and tough as nails. So maybe the hard beginning actually helped him. The next morning I was all nerves and ready to meet my little boy.
 
 What did I tell you about the swelling... yeah. Plus I got acne really bad during my pregnancy. I definitely did not glow nor did I feel at all pretty.

 I went in for my c-section and Maxwell Oliver Brown entered this world on August
16th, 2008 at 8:24am coming in at 4lbs 14oz and 17 3/4 inches long. I was scared and wanted to know why I didn't hear any crying. What felt like forever had passed and I finally heard it. My little boys sweet first cry. I remember being strapped to the gurney unable to move my arms crying. I tried to see past Jeff to get my first glimpse of this wonderful gift I had been waiting so long to receive. I had given Jeff very specific instructions to document every second of what I couldn't see. Little did I know until a few months later Jeff was blocking my view for a reason. Max wasn't breathing when he was first born and the nurses were working to give him air.


 When it was all said and done I finally got to meet my little boy for the first time when he was 24 hours old. I was so scared to see this fragile little baby with oxygen, cords and an IV attached. I was afraid to touch him at first thinking he was so fragile I might move something or do something wrong.
 Our first family picture.

It's crazy to see the little boy Max has become compared to that first time I saw him. So many details have become hazy. I remember my family and friends coming to visit. My sister came from Texas and stayed for a few days and then came back several times and when Max came home for a week. She must have made 5 trips back and forth between Texas and Oklahoma. I also remember the award winning pep talk she gave me about how even though I was scared I was made for this. And I remember my best friend Christie coming to visit with her husband Greg and their newborn Nicholas. She went to meet my little guy in the NICU and Greg was nervous about seeing him so he stayed and kept me company and watched Nicholas. It was so sweet for him to stay with me and it made me start to feel normal to have a conversation that had nothing to do with pain medication or if I had lost any more water weight. The nurses and my Doctor kept close watch of if my blood pressure was going back to normal. They weighed me everyday to make sure that I was getting rid of all of the water that I had gained from the swelling. The day after Max was born I lost 30 pounds of just water weight on top of delivery weight loss. I didn't realize how much I was being weighed down until I started to loose the weight. It also made me feel better to know that I hadn't gained as much actual weight that I would have to work off as I thought. I was released from the hospital after 5 days and it felt so strange coming home without our baby. Jeff went back to work so that he could have more time off when Max got to come home and my sister stayed with me. Bringing me back and forth from the hospital several times a day. Even the smell of the hand soap to this day takes me back 4 years ago. It's all of the small things that seem insignificant to others but what make up my son's birth story and mean everything to me.
 
Max finally came home after 10 days in the NICU and it has been a crazy ride ever since. Those first months were a definite learning experience. It also showed us how many people truly cared about us and the newest member of our family. The little boy that came into this world early at 33 weeks is growing by leaps and bounds and I don't want to forget any of it.

These are pictures from those first couple months at home.

I realize this post is insanely long but when you walking down memory lane it's hard to not make a lot of stops when they are this adorable.

Wednesday, August 1, 2012

4th Of July

I had to work on the 4th of July so Max didn't go to the parade. It was some of the best 4th of July weather I can remember in a long time. Don't get me wrong it was hot, but it was actually a manageable kind of hot with an occasional breeze thrown in. After I got off work went over to my brother Jeff's house to see the whole family. We cooked out, swam and even ended it with homemade ice cream.

Since the whole family was there I got to see my adorable niece!

And of course we ended the night with a literal bang. Max loved the fireworks. Jeff not so much but oh well. Max wanted to explore toward the end and started getting a little restless. We stuffed the back of the jeep with blankets and pillows and enjoyed some popcorn and juice. It was a busy day from start to finish but it was nice nonetheless.

Wednesday, July 18, 2012

New Craft Obsession

I realized that I haven't posted much about about my new craft obsession, CROCHET! Even though I have only been doing this for a little while I have had the opportunity to dabble is several things. Dishcloths, blankets, dolls, flowers and so much more.

A wedding presant for my nephew Eric and his new wife Krystina.

A doll I made for my new niece Hayden.

I wanted to welcome Krystina with something special from me to her so I made her garter for the wedding.

Tuesday, July 17, 2012

Lemon Verbena

Lots of things have been going on lately. Max is still in school for the summer but we were in Texas over the weekend to see Aunt Jenny, Uncle Brian and his cousins. Also I'm on vacation this week and we thought about potty training Maxwell but that idea was quickly squelched. A lot of people think that we should be more aggressive with it but I'm with Max day in and day out and I know he isn't ready.  I know Max better than anyone else and he is close but not there yet. So now my vacation is being spent hanging out doing a little crafting and catching up with friends. Seems like every time we are out doing something either Max doesn't want to take a picture or I forgot the camera. So here is a few miscellaneous shots from the past month in no particular order. And of course a 4th of July post is coming soon.

 Sharing ice cream before bed.

 Sleepy boy on the way home from Texas this weekend.

I was making cookies and came in from the kitchen to find my sweet boy and Maddie watching a movie.

 Playing outside

Jeff and I went to Tulsa for the weekend while Max stayed with Papa. We went to a concert to see Everclear, LIT, Gin Blossoms, Sugar Ray and Marcy Playground. It was a blast from our high school days. Nothing makes you feel more old that calling to say goodnight to the kiddo from the lobby between bands setting up. 
 After we bought new underwear at the store Maxwell entertained me playing the nose flute. Don't ask, Jeff taught him.

 Of course some days have been a little less fun...

I love that Max is getting to an age that he actually plays with his toys for its intended purpose.

Tuesday, June 19, 2012

Father's Day

I may harp on Jeff and poke fun but I really am married to a pretty good guy. Yes he has his faults and goodness knows I have mine. I'd love if he would stop leaving the gas light on in the car or if he could remember to do the things on the lengthy honey do list that I made for him. But, overall he is a pretty good catch and a great dad. Jeff was new to the kid thing when we had Max and even with Max's early arrival he took it all in stride. Then when Max was diagnosed as special needs he again was cool and calm. I couldn't ask for a better partner in crime. He helps me see the humor in things that would normally make me cringe and I bring him back to reality. Not only do I adore Jeff but Max is a major fan of his daddy. For father's day this year I made Jeff his favorite meal and some brownies while Max made an adorable paper tie and we made a card. Plus Max and I got out of Jeff's hair so he could chill. So after a nice chill and a tummy full of brownies Jeff in all of his glory has been celebrated!

 Max's card for daddy... I traced his hands. On the front it say "I love you..." and the inside reads "this much". Pretty cute if I do say so.

The paper tie I told you about. He made it at his first day of summer school.

Last Day of School

The end of Max's first year of school has officially come to a close. We signed up to bring a treat. I kept telling Jeff that I wanted to do something different from the regular cookies or rice krispy treats. So Jeff mentioned root beer floats and I thought it would be great to also give a cool cup to take home. Good idea but a little sticky. Now Max has started summer school and it's a entire new ball game.



An end of the year frozen yogurt treat at Menchies!