Birthday Phase 1

Max is having a family party next weekend for his birthday. We wanted to have a little something for Nicholas and Kacee too though since they are all buddies. So we had pizza and cupcakes and played outside. Nicolas couldn't make it, but Mrs Christie came in his place. Kacee and Max had fun playing with the water sprinkler , water balloons and bubbles. After the festivities everyone went home and Max and Daddy had a nice long nap while I headed of to work. I know I don't usually work evenings but I was doing it for a friend. I forgot what it felt like to work that late!

I made these travel books for Nicholas and Kacee to go with the goodie bags.

Here are the goodie bags full of water balloons, sidewalk chalk and bubbles for the kiddos. Also since the kids were outside I made visors. I attempted to make them look like Elmo.

Happy Birthday to you....

Yum!

Mrs Christie brought silly sting that we played with too. Not pictured is a beach ball sprinkler that he kept trying to drink from. Of course he was so cute.

Kacee didn't want to get in the sprinkler, but she loved the bubbles! Thanks to everyone for coming!!!

MRI results

MRI √
CT Scan √
EEG √
Several X Rays √
Numerous Genetics Testing √
Overnight Stay in the Hospital √
2 Ambulance Rides √
Premature Birth √
Special Orthotics to Walk √
Weekly Physical & Speech Therapy √

What a list for a little boy who is not even 2 yet. As you may be able to tell Max had an appointment yesterday with his neurologist Dr Norman at Integris. The MRI showed NOTHING!!! Not nothing, but nothing important. Max does have a small spot on his brain I would say is about the size of a nickel. Turns out it is basically like a freckle on his brain. It's not the cause of the problems Max has been having nor is it the reason for his seizure back in January. He will always have it and it's no biggie. I was really positive that the MRI would show something. ANYTHING! So it's back to the drawing board. The doctor asked me several questions about my family and tested my reflex's. Dr Norman is now thinking that Maxwell might have something called Myotonic Dystrophy it's a form of Muscular Dystrophy. So lets find the silver lining, no Max doesn't have Chiari and no he doesn't need to have brain surgery. However, being realistic if this is Myotonic Dystrophy it is something he will live with forever. The symptoms vary depending on several things, however, the early it is found the more severe it tends to be. It can show up in all stages of life. Also many people have been asking why Max has speech problems then. Well I have not shared this yet but Max failed is last hearing test at the end of last week. We have to go back in to get retested on the 12th and go from there with that one. I hate waiting but that is the only option that is being given right now.

Maxwell waiting for the Doctor to come in.

2 tutu's and a few crafts thrown in!

Here are a couple of tutu's that I made this week. The red one is for a co worker of mine and the purple one is for Amy one of Maxwell's therapist's little girl Emily.

Next I finished up the party favors for Maxwell's Sesame Street birthday party. This one is for Nichoas.

Then came some ouchie cold packs.

Last I made some stuff for some of my favorite ladies in Texas. The tote bag is for my favorite niece Emma and he camera strap is for my nephew Eric's girlfriend Emily. Hope they like them!

Until next time!

MRI

We finally made it our MRI!!! Max had started getting sick on Sunday and it continued on into Monday. At first I was worried that they wouldn't do it, luckily they did. Of course Max having absolutely no stranger danger issues went straight to the person doing the test and thought he was headed to have some fun. Little did he know... They said he did great in the back. He laid down and started breathing in the gas watching the balloon that was attached go up and down and went right to sleep. He did end up getting an injection because they wanted to place dye in him to see some extra stuff. I figure get it done now rather than later! They told me he was going to be grumpy after he got done but I didn't know he was going to be a reincarnation of the devil!!! On top of having a bit of a cold he wasn't feeling good from the anesthesia. He couldn't keep anything down and of course it all came up twice exorcist style at the restaurant where we were trying to get some lunch. I felt so bad! All day all he did was whine and cry. Poor guy went through a lot of stuff yesterday. I still don't know anything and wont for probably a week. The person who did the test did say that they think they found what is going on though. So I guess that is good and bad. I'll keep you all posted as I know something.
This is Max in the car crying after he started waking up from the anesthesia.

A little fun in the sun!

Max and I went over to the Jaggi's house for some fun in the sun and pizza on Thursday. They have a pool in their neighborhood and Max, Nicholas and Kacee got together for some swimming. Max loved being in the water with the kids. Nicholas couldn't have cared less. He was more interested in exploring every nook and cranny around the pool. I'm telling you that kiddo is bound to be an archaeologist all the exploring he loves to do. And little mommy Kacee kept pushing Max around in his floaty for me. It's a hard job but somebody has to do it. I'm horrified to tell you though that on the way home Max put his finger in his nose and when I noticed I said "No sir that is yucky!" He pulled his finger out and of course there was a disgusting boogie on the end of his finger. I was so grossed out that I told him "Eww!" I wiped off his finger and he proceeded to cry like I stole his pot of gold. Oh please God don't let my little boy be the booger picker!!! Also the wait is almost over and our MRI is tomorrow. I wont know anything but I'm going to try and post tomorrow and let you know how it goes. Keep thinking happy thoughts!

I'm no Speilburg but...

Max has therapy on Fridays both physical and speech. During speech therapy we worked with a new toy and learned about putting things "in" and how I can work with him on repetition on a few basic words. Amy is his speech therapist (love her!) and Jamie is his physical therapist (love her!). Jamie came in the afternoon and we really worked on Max's fine motor skills. We worked with some Play Doh and let him have a snack of applesauce. Max doesn't eat with a spoon or fork still and I'm really ready for that. We practiced for a while and the end result was messy but good. We worked on it again last night while he was eating dinner and I wanted to show you all his work in progress. He started winking like the true playa that he is too.

Hurry up and get here MRI!

I know that some of you know that Maxwell has an MRI coming up on the 26th of this month. I was starting to get concerned because he has been falling over a lot. And not just falling over because he is a toddler but he will simply be sitting down and just fall over. He is having some symptoms that either I have never noticed before or are just beginning to show up. This was the best picture I could get of the injuries from one of his recent falls. He was playing in the hall and tipped over cutting his chin. Luckily it was a small cut and only required our friend Scooby Doo to cover the cut. I called the doctor and they tried moving up the MRI but there weren't any openings. This wait is really starting to kill me, but we have made it this far so what's another week I guess. Also for those of you who are curious the weird rash that Max had ended up being something viral that is going around. Thanks for all of the suggestions!

New Kitchen Art

Here is something that I have been wanting to make that I saw on a blog I read. I made some minor adjustments and am pretty excited about what I came up with. I haven't hung it yet so we'll see how I actual like it once it's up.

What is this?

Max keeps getting what looks like hives or a heat rash the past 2 days. Yesterday Max had them on his legs and today is even worse. It's on his arms and legs and looks bad. Tell me what you think. My vote is heat rash but what's your vote? Whoever figures out what this is gets a nickel and a hug!

Balloons

Max and I took a little trip to the Dollar Tree today. He fell in love with the Mylar balloons. So I came across those punching balloons that have a rubber band attached. I blew it up and was happy to see that he figured it out quick. Only problem was he kept laying on the balloon and I was worried that I was going to have an "after" picture of the balloon.